BUSINESS AND IMPLEMENTATION PLAN IN RESPECT
OF FUNDS APPLIED FOR: NAME OF ORGANISATION:
National Osteoporosis Foundation of South Africa
MAIN OBJECTIVES OF PROJECT/S
a) Heighten awareness/ Improve education of patients to ensure wwearly
diagnosis and treatment
b) Educate health care workers (guidelines, courses) and to wwpromote
clinical research into fracture prevalence and burden of wwdisease
c) Negotiate with Government and Medical Aids to ensure access wwto
medications for all (this does not exist at all!).
2. COMMUNITY
This is a National initiative hoping to benefit all women, the aged and
the chronically ill suffering from the devastating consequences of osteoporosis.
3. BENEFICIARIES
The aim is to target those individuals whom are most at risk to suffer
the consequences of osteoporosis i.e. women, the elderly and the chronically
ill (potentially 4- 6 million South Africans).
4. PERSONNEL
The Foundation uses its current full time employees (CEO and Administrative
Officer), existing Council (8) and volunteers until such time where we
will have funds for national offices.
5. ACTIVITIES, TIME FRAMES AND OUTCOMES
ACTIVITIES |
TIME
FRAMES |
OUTCOMES |
|
1.
Heighten Awareness of OP 1.1 Increased liaison with PR Company re media/TV/radio exposure 1.2 World Osteoporosis Day 2007 1.3 ? distribution self risk test |
JUL
2007 to JUL 2008 |
Greater
awareness /knowledge to effect empowerment of patients Prevention of osteoporosis Prevention of osteoporotic fractures |
|
2.
Increase Patient Education 2.1 Increase amount of newsletters to 4 per year 2.2 Expand information z-folds 2.3 Update NOFSA web site regularly |
||
|
3.
Update National Guidelines for diagnosis and treatment |
Management
of advanced osteoporosis |
|
|
4.
Training Courses in Osteoporosis 4.1 Physician's Update Course 4.2 Other courses |
Improve
knowledge, training, skills in treatment of this neglected disease |
|
|
5.
Clinical Research Projects: 5.1 Fracture Epidemiology 5.2 Establish Burden of Disease 5.3 BMD normative data |
•
No South African statistics for this potentially devastating disease exist. We urgently need these to lobby successfully |
|
|
6.
Negotiation with Medical Aids to make medications/care available to all |
The
majority of osteoporosis sufferers do not have access to any form
of osteoporosis prevention or treatment! |
|
|
7.
Government Lobbying |
6. MONITORING
Sub- projects 1 and 2:
Response of patients to be monitored via:
i) number of telephone inquiries
ii) number of help-line inquiries
iii) written queries
iv) e-mail queries
v) web-site hits
vi) number of new members
Sub-projects 3-5:
Ascertain as to whether projects were realised viz:
i) National Guidelines compiled and published?
ii) Training Course for Physicians held?
iii) Research objectives met?Sub-projects 6 and 7:
wwHas there been any improvement in patient access to wwmedication and care in both the Public and Private sector?
Council/Raad: Prof S. Hough (chairman/voorsitter), Dr T. de Villiers
Prof B Ascott-Evans, Dr S. Brown, Prof B Cassim, Dr S.Lipschitz,
Prof J. Pettifor, Prof E. Sonnendecker.